Elzė, who lived with the rare Edwards syndrome, made the hearts of many Lithuanians tremble. A few years ago, her mother, Silvija Kopūstienė, appealed to the public for help and told the little girl’s story. On Thursday, the “Beam of Hope” group on the Facebook social network reported the loss of Elze.
“Elzytė, the queen of all our hearts, has left us… She flew out like a butterfly to meet the bright morning sun, flew to the land of eternity… You left an infinite amount for everyone… You learned to believe in miracles, to fight, not to give up, to enjoy every moment, to dream and love… Fly easily, the most wonderful angel, let the soft clouds pave your way, your radiant friends welcome you.
We will feel and love you forever… To mom, dad, sister and brothers, our sincere condolences in this painful and difficult hour, no words will ease your pain, so we ask God to surround you with his warmth, peace and comfort. We give you a big hug, we are with you, my love,” the “Ray of Hope” group wrote.
Personal arch./Elze with mother Silvija
In an interview a few years ago, Elze’s mother said that she found out about the diagnosis already on the tenth day of her life, but the doctors immediately became suspicious based on the external signs.
“The fingers were clenched into a fist, the legs were slightly deformed, the ears were slightly lower. At that time, these external signs did not catch our eye, but now, when I see a child with Edwards’ symptom, I would immediately recognize it”, – 15 min. lt said the girl’s mother Silvija.
S. Kopūstienė revealed that such children with Edwards syndrome also have internal organ pathologies, which is why various viruses are fatal for them.
“Such children are very weak, have various multiple pathologies of internal organs, so the simplest infection can be fatal for them. Our biggest problem is epilepsy and urinary tract pathology, which causes bacteria to accumulate there and cause infections,” said Elze’s mother.
The woman admitted that the first shock after hearing the diagnosis was huge. At that time, the doctors didn’t even say that the girl would be disabled, they talked about when she would die: maybe in an hour, maybe in three days, maybe in two weeks, etc.
“Then all you think about is that you can enjoy one more day with this baby that you carried inside you for nine months. My husband and I both cried about having to bury our child. Could anything be worse? So for the first three days we all cried, we were already planning the funeral, we were thinking about how we would have to tell the other children that their little sister, whom we all raised together in my belly, was about to die.
Personal arch./Elze with mother Silvija
But on the third day, she suddenly started breathing on her own. Then I got angry with everyone and said, “The child is clinging to life with all its might, and you are burying it. Do and think what you want, and I am Elze’s mother, she wants to live and I will do everything for her to live!” – recalled Silvia.
